Chronic Pain + Time Management

It’s no secret that I live with Chiari + Syringomyelia but did you know it’s also the reason for many of my negative thoughts. They are thoughts that trigger self-doubt and lack of confidence. The chronic pain, the aches, the body pain, back pain, the headaches, the stiffness in my neck are a daily reminder of the things that I can no longer do. It can really bring me down – if I allow it to. My days are planned out around the level of pain I’m in on that particular day. So, how do I manage my day to day while living with chronic pain – besides my pain medication of course! …. Time management.

Yes, that’s it, no magic to it! I manage my time wisely, I don’t over do it and I listen to my body – did I mention I have to plan my day around the level of pain I’m in?! Yes, after that, I do whats a priority first and go from there. I don’t have to get everything done, but I do try to do what’s most important. And this can be tough when your day – like mine, will usually include days where I need to visit the doctors or have to do a routine MRI or CT Scan – yeah, those are fun …. said no one! If that’s the case, I’ll tweak my day knowing that my body and brain will be extra tired because of that doctors visit and will consider my day extra short.

This next thing is really important when living with chronic pain and I know it can be difficult to do is, to rest. I need to find time to rest. If I can’t lay in bed, I simply sit down for a minute or two or three, but I need my rest – better yet, my body craves rest. If I don’t get enough sleep, my body will feel it the next day. So, if I plan something where it involves leaving my house, I also have to plan to rest when I return. I do this so that I don’t get the wrath from lack of sleep afterwards. I can get anything from vertigo, to nausea to having vision issues. It all goes south really quickly from lack of sleep.

So, how do I manage my time as a stay at home mom with my babies?! Well for one, they’re all not on diapers – phew, two, I know it’s summer time but they do school related papers for me – no I’m not that crazy mom, and three, schedule! The littlest ones are on a schedule, they take up to a three hour nap or nap twice a day. Meanwhile, the older ones will be eating, reading, arguing playing, etc. And as for myself, this is my time to plan on a post for my blog – like a ‘Meme Monday,’ ‘Reblog Wednesday or ‘Nail File Friday’s’, even something on my online shop, eat and shower! Yes! This ‘nap time’ is ‘mama’s time.’ I do this because that’s what I’ve put on my plate and I so need I to be efficient with my time.

All the hard work and determination you put into anything today will pay off tomorrow.

Lastly, the thing that I’ve experienced with chronic pain is that besides it being an invisible illness, you have to self motivate yourself. You must! No one knows better than what you’re going through than you. If you don’t, this thing – chronic pain, will bring you down with it!

I would love to know how you manage your time while living with chronic pain, share your thoughts.

A-

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33 thoughts on “Chronic Pain + Time Management

  1. You are truly a fighter as I always say.
    But above that you are an inspiration.
    There are people who have it all but still cribbing and give up on hope and life then there are souls like you who make it even through pain and hurt.
    You are always in my prayers. I am so proud of you my dear friend. You doing really great.
    Love and hugs

    Liked by 4 people

    1. Thank you so much Bhavna! Yes, life is now different and I am trying to accept the new me as best as I can. Even though I am tired and in pain, I have 6 little reasons to keep pushing. 😊 I appreciate your sweet comment friend, hope you are well. 🙏🏽

      Liked by 2 people

  2. Wow. I never heard about chiari-syringomyeli. I also saw the images of that surgery. I am very glad to be in the blog world because I can see great people like you.
    “being an invisible illness, you have to self motivate yourself. You must! No one knows better than what your going through than you. If you don’t, this thing – chronic pain, will bring you down with it”<– this shows the every day struggle. you are really an inspiration

    Liked by 4 people

    1. Thank you Unni! Yes, it’s rare – 1 in 1,000 people live with it. Likewise, it allows me to also meet people like yourself. I’m so glad to be shining light on something that will hopefully help others be aware of. 😊🙏🏽

      Like

  3. great post, I so wish I could give you wisdom on how I did all this with multiple children but you will figure out what works best with you as time goes on. it is a series of trial and error and I am still trying to figure it all out on some days. you are doing well, you are probably not giving yourself enough credit for all you do!

    Liked by 2 people

    1. Me too! I know, I know I’m not alone, there are other’s experiencing the same. But since recently the numbness on the left side of my tongue is progressively becoming worse. I don’t want to admit that and say it out loud though. I don’t want to worry anyone. What’s the worse that can happen, another surgery?! I’ll get through that. Do you feel that way sometimes, feel like being silent is best for the sake of those around you?

      I have an MRI scheduled next month we’ll see what may be going on. Ugh! As they say, KEEP IT TOGETHER!

      Liked by 2 people

  4. You inspire me always. I was just thinking to myself..how do you do all the things you do? And this post has the answer…coz you made it all happen. I applaud you and I hope that you have a lot more good days than bad. And please rest when you do need to. Have a great weekend!

    Liked by 3 people

  5. A wonderful post!

    It’s nice to hear that you don’t let it stop you from being who you are, and whom your family needs you to be! I won’t go into details, but my wife suffers from a few things. Like you, she has to manage her time, as she copes with the pain. The kids were all grown when it all started, I can only imagine how much harder it is with younger kids.

    You are a superwoman; one who knows that it’s not about the power others see. But the power of heart; the strength to be strong for yourself, and for your family!

    I’m adding you to my prayer list, God bless! 🙏🏽

    Liked by 3 people

    1. Thank you so much Warren for such uplifting words. It can all get to be a bit draining, but as they say, the show must go on – my life must go on. The little ones keep the fire going, a reason to push through and ultimately another reason to fight. Prayers to your wife as well, it must be a bit of a relief not having younger children to care for while in pain but she’s still a warrior none the less! 😊🙏🏽

      Liked by 1 person

  6. So important to have down time. My daughter has always known I need to have my own quiet time and at 21 she still knows it. Especially with an illness we need or rest/nap time and even time alone to do what we enjoy like reading or whatever else. Sounds to me like you are managing your time just perfectly

    Liked by 2 people

    1. Thank you so much Lisa. So sweet. The whole basis of the blog was Chiari. And now I find myself not wanting to ‘face the music’ so to speak. I think it can be difficult for some people that don’t live with chronic pain to fathom what we go through on a daily basis. Daily. Not every now and then, not every other day, not when we ‘over do’ it, no. Daily. But we fight the good fight. We have our reasons to fight, to get up out of bed each morning or a reason to shower – I have six reasons why I push through the pain. Others are fighting for themselves. That’s phenomenal! Whatever the reason, whatever it is that helps motivate you, that’s incredible. Let it continue to be the reasons why for you! 😊🙏🏽

      Liked by 1 person

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