Reblog Wednesday: It’s Ok To Have A Bad Day — MakeItUltra™

I share with you today a post from Dr. Perry. It’s such a reassuring post, full of truth and honesty – a must read!

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As a stay at home mom, let alone mom, I too often feel the pressures of being the ‘perfect’ mom and meeting societies expectations of their definition of a mom. This is far too difficult and overwhelming. I can say that these thoughts are also due to judgmental parents, parents wanting to scrutinize other parents, while they themselves don’t have their [bleep] together. The stress that comes from these thoughts and the constant wanting to be ‘on top’ of everything and trying to go the ‘extra’ mile to try to make others perceive that I am that ‘perfect’ mother can be too much. It’s also close to impossible for me to physically do that because of the chronic pain that comes from living with Chiari + Syringomyelia. I do try remind myself to be easy, loving, and patient, but self motivation can be hard on days where optimism is nowhere in sight.

I believe in having a good laugh as well as having a good cry. In being present and acknowledging your emotions. It’s not being negative, it’s being honest. It’s also not going by what the world expects from you, it’s what you believe to be what’s right for you. It’s also not pushing your body to the point where it retaliates and begins shut down. In my opinion sadness is also needed to truly appreciate when we are happy. How would you know happiness if you haven’t felt sadness?! These sad days will also be some that won’t last for long. And as Dr. Perry pointed out, balance.

We need balance in our lives, everything in our lives are teaching moments, take those moments and learn from them.

Also, knowing what to take on and what not, knowing what things are best to let go, because somethings are just not worth the emotional turmoil.

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By Dr. Perry, PhD “Bad times have a scientific value. These are occasions a good learner would not miss.” ~Ralph Waldo Emerson I believe in maintaining a positive attitude in my life. But I also acknowledge that life is not perfect. It is impossible to live your life in an inexhaustible positive state of mind […]

via It’s Ok To Have A Bad Day — MakeItUltra™

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Reblog Wednesday: Reaching the top of the mountain… — Cristian Mihai

Reblog Wednesday: Reaching the top of the mountain… — Cristian Mihai

If you haven’t visited Cristian’s blog, I encourage you to do so. I wanted to share this one here with you.

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This post here in was full of truth. I’ve always thought that often times, I am my own worst critic. I live with chronic pain which in return is followed by self-doubt. I try not to blame others for my physical pain and diagnosis, you know, answer with an attitude or be harsh, after all it’s no one’s fault as to what I’m feeling. I’ve also seen that when I want to start something new, have an idea for something, I am quick to have reasons as to why I can’t do it – before it even begins. I begin to write up a list in my mind as to why I can’t reach things, won’t achieve them and in turn my ideas go to waste, the opportunity slips away. This mountain that is often full of pain and anger, it’s full of negativity, of self doubt and unaccomplished things. Maybe it’s due to my diagnosis, or my son’s autism diagnosis or just a combination of many things. Nonetheless, this is the mountain that I always try to move for myself – daily. It has to be done, otherwise, this mountain can turn into depression, anxiety, and instead of climbing it, I can fall from it. This is a mountain that often goes unseen by others, but that I feel deep in my soul.

Fortunately, with age comes wisdom, faith and hope. The wisdom to know when I need to stop the negative thinking, the faith of knowing that all things can be done through Him, and the hope of knowing that there will always be light, as long as I’m willing to see it.

Do you have mountains, how do you move them?

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“It isn’t the mountains ahead to climb that wear you out; it’s the pebble in your shoe.” – Muhammad Ali Ever felt like a failure? Worthless? Lonely being redemption, broken beyond repair. A waste of time? Ever felt that it just doesn’t matter? Ever felt like you couldn’t do something because it was too difficult? […]

via Reaching the top of the mountain… — Cristian Mihai

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Reblog Wednesday: Badass — Real Life of an MSW

There have been so many moments in my life where there has been self doubt. The moments where I think of doing something and I hold myself back. Because as the saying goes, ‘I am my own worst critic.’

The negative thoughts often are too hard to avoid and the positives are often hard to believe.

If I’ve ever thought of starting to live, to breathe, to be free in my own skin, I think that time is now. The time to take the leap, the jump, that jump that’s going to take me to where I want to be, that time is now. I was reading a story on a Texan woman police officer, she was and still holds the record for being the oldest woman to ever been sworn in the academy in her city, at the age of 54. Her story was both astonishing as it was inspiring.

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In the few months that I’ve been blogging many have touched my heart, inspired me and motivated me, as living with Chiari + Syringomyelia can really take a toll to ones spirit. But as I battle my days with chronic pain, this post by Real Life Of An MSW was a great reminder of the abilities that lies within a woman. It reads, ‘a badass woman starts her projects …. doesn’t wait for an invitation.’ This here reminded me of how regardless of my physical pain, everyday I still need to continue to push through – keep pushing. Since I began my journey here – I’ve surprised myself more than anyone, I’ve open an online shop and just very recently Simple Nail Designs – my YouTube channel.

What the mind can overcome when the will to thrive rises.

It’s also a reminder that a woman is far greater than anything, far greater than she can even imagine, she’s strong, she’s powerful, she’s determined, because she’s simply, ‘a badass.’

Happy Wednesday.

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A Badass woman doesn’t wait for people to ask her to do something or notice how great she is, she says. She starts her projects, take up space, or raise her hand because she doesn’t have to wait for an invitation. -Jennifer Baumgardener Positively Purging-I welcome your feedbacks in the comments and your likes […]

via Badass — Real Life of an MSW

Nail File Friday’s: Red + Gold Nails

This week I wanted to make something extremely simple – yes that’s possible! You know when you want to do something, but feel so busy, too tired and out of energy. But, know that certain things just should be done. Doing my nails this week resulted in just that. As someone that lives with chronic pain, things can easily slip by, so it’s essential that I try to motivate myself in finding ways to get things done for myself as easily and efficient as possible. Because as they say, it’s the small things.

The red nail polish in this look is so vibrant and the gold makes it look so fancy! It can even be recreated for a holiday party, work gathering, festivity or celebration.

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Nail Polish Used: I used the color ‘Really Red’ but this is the next best thing Essie Russian Roulette (bright red) and Good As Gold (gold)

Nail Tools Used: Nail Brush + Dotter  for cleaning the sides of the nails and dotter for making dots on all nails.

 

Step One:  1 Coat of ‘Seche’ Base Coat

Step Two:   2 Coats of the red nail polish (three strokes per coat on each nail)

…. Allow the nail polish to completely dry before doing any nail art ….

Step Three:   Using a piece of aluminum foil, place a bit of the ‘Good As God’ Nail Polish on it, dip the dotting tool and create a few dots just on the side of the nail – wipe the dotter clean by dipping it in acetone after each use, going in a zig zag like pattern, continue to create the dots

…. Allow the dots to completely dry before applying the top coat ….

Step Four:  1 Coat of ‘Out The Door’ Top Coat

This is optional ….

‘Cuccio’ Cuticle Oil – Milk & Honey  – it helps keep your cuticles moisturized, cuticle oil will avoid your cuticles from drying, this can happen from the use of nail acetone.

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Disclosure: Mom Life With Chiari is a participant in the Amazon Services LLC Associates Program, an affiliate advertising program. As an Amazon Associate I earn from qualifying purchases by linking to Amazon.com and affiliated sites. I will not recommend or buy anything that I do not already own and love or would not use for myself and my family. I make a small commission when you click and make a purchase on any link my website provides at NO additional cost to you. Thank you in advance for supporting companies that support me!

Reblog Wednesday: No Perfect Answer — MakeItUltra™

This ‘Reblog Wednesday’ comes from Dr. Perry, his blog is so motivational. Do you ever go about your day questioning certain things in your life? Do you ever get them answered, perhaps some you do, while others you don’t. This quote reminds me of how there have been too many times to count the days where my questions go unanswered. At times I question many things most often when I’m in a doctor’s appointment waiting to be called, during an MRI exam or a CT Scan, etc. These specific events always take me back to a place I often don’t like to revisit. In particular the why’s of my Chiari and Syringomyelia diagnosis, why not, after all, I am that 1 in 1,000. And maybe this isn’t the case for you, maybe you have unanswered questions about the loss of a job, heartbreak, a breakup, a medical diagnosis for yourself or someone you know, whatever the case maybe, this quote comes to relieve you of that stress. I am a true believer that in God’s hands is where it all must go, and with this comes freedom.

Freedom is, when you stay in the now and leave tomorrow for tomorrow.

And as the quote continues to read, ‘there may very well be no perfect answer.’ He’s absolutely right, as stubborn as I am, even if I did get an answer as to why I am that 1 in 1,000 the answer may very well not be enough for me.

via No Perfect Answer — MakeItUltra™

If I can’t change my diagnosis, at least I can change my perspective.

Happy Wednesday.

A-

National Chiari Awareness Month – 2018

National Chiari Awareness Month – 2018

The month of September is Chiari Awareness Month. In May of 2013 I was diagnosed with Chiari 1 Malformation and Syringomyelia and my life since then has changed – tremendously. I remember going recently to a store, because it’s a place I visit regularly – they’re a sweet Vietnamese family, I’ve got the chance to get to know them. We were discussing Chiari the last time I went there, one of the daughters said, ‘besides going to the hospital when I was born, I’ve never been there.’ I was speechless, I know my way around – just about, every hospital in my area, I even know what hospital not to go to because they lack ‘my’ department – neurology. The difference between someone with Chiari Malformation, Syringomyelia, among many other different illnesses, is that we know too well what is like to be at a hospital – while others don’t. It’s an unfortunate truth.

Image result for chiari awareness month

There are currently four types of Chiari Malformation and each are classified by the severity of the disorder and the parts of the brain that descend into the spinal canal. As you can see, I have type 1, this is when the lower part of the cerebellum called the cerebellar tonsils extends into the foramen magnum. This is where only the spinal cord would otherwise pass through. Chiari unfortunately goes un-diagnosed, and is first noticed during adolescence or adulthood, usually by accident during an examination of another condition. As it happened to me, I went into the ER in May of 2013 for what was suppose to be a quick ‘trip to the ER,’ but turned out to be far more serious than your typical ‘headache.’

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What surgeries have I had for Chiari 1 Malformation and Syringomyelia? As for the Chiari, in May of 2013 I had emergency posterior fossa decompression, here the surgeon created more space for the cerebellum as this relieves pressure on the spinal cord. At this time the surgeon also made an incision on the back of the head and down the neck area, and removed a small portion of the bone at the bottom of the skull, this is called, craniotomy.

In November 2017, for the Syringomyelia, I had spinal laminectomy in which they placed a syrinx shunt – this shunt (a flexible, tube like device, according to my surgeon it’s also less than the size of a hair strand in diameter) will remain in my body forever. The syrinx shunt diverts the fluid from the syrinx into another space in the body where it can be absorbed. There are a few locations where the fluid can be absorbed and this is what differentiates one shunt from another. The shunt I have is absorbed in the peritoneal space, also known as the abdomen. The space location is determined on the patients case and the surgeons personal preference.

Why spread awareness for Chiari Malformation? Without awareness there is no funding, without funding, there is no research, without research, there is no cure, without a cure, there is no hope. However, if not in my lifetime, maybe another’s, but I pray that there will be a cure for Chiari – someday.

Today, I’m still living with a number of ongoing symptoms such as difficulty swallowing, headaches, vertigo, imbalance, difficulty concentrating, etc. which also includes chronic pain. I need to be monitored for changes that can occur in the CSF flow or cerebrospinal fluid. I’m currently experiencing severe numbness on my left side, especially in my face and tongue – you’d never know it if you’d see me. However, I finally have a great neurological team that is helping by monitoring me, via MRI’s and managing my pain levels, via medication, as best as they can. It’ll always be a process, but it’s a process that with patience, it’s as tolerable as it can be.

The perfect cure for worry, is to trust in God. 

And in light of my series ‘Happy Meme Monday’ I’ve decided to include some Chiari Malformation memes. Enjoy.

These memes – sum it all up. Have a blessed Labor Day.

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Visit my online store for Chiari Malformation awareness merchandise.

Blogger Recognition Award 2018

I received this incredible recognition by James, he’s over at Myplace3187. I’m a relatively new blogger and James is one of the first bloggers that I began to follow, since then he’s been an amazing support for my page, as he has for me. Thank you James for it all and for this ‘Blogger Recognition Award.’

blogger-award

The Rules:

  1. Thank the Blogger who nominated you and provide a link to their blog.
  2. Write a post to show your Award.
  3. Give a brief story of how your blog started.
  4. Give two pieces of advice to New Bloggers
  5. Select 15 or more bloggers for this award.
  6. Let each Nominee know you’ve Nominated them and leave a link to your post.

How I Started Blogging ….

There are a few reasons behind having started this blog, however the main one was bringing awareness to my illness – Chiari 1 Malformation + Syringomyelia. It’s a congenital condition in which the brain tissue extends into the spinal canal. There are 1 in 1,000 people living with this rare condition. The great news – since I started this blog, I’ve connected with so many wonderful fellow ‘Chiarians.’ Although it isn’t a walk in the park, to feel their strength and support is what I’ve been wanting – to connect with those that are walking in my shoes. They are the reasons for this blog.

I’m also often called mom by six tiny humans and wife by a Marine veteran. So, here you will find a glimpse of my life, all that’s in between and my life with chronic pain.

Two Pieces of Advice For New Bloggers ….

  1. Definitely try not look at your stats – says the one that just looked at her stats! I know it’s hard, I know it’s there, I know numbers ‘don’t lie’ however those numbers will break you on a bad day. Keep focused, have patience and the rest will follow.
  2. Have a good thing ‘going’?! Don’t be afraid to monetize from your blog. Yes, I love to blog, I enjoy writing and if you have been a follower of mine, you’ve noticed that I have three days out of the week where I will absolutely try my best to blog because it helps me keep myself on track. My life is a bit busy so I appreciate a good schedule. However, with that said, blogging is a lot of work, hours, at times researching and overall time consuming! Shocker, I know! So, if you love what you’re doing, you’re spending countless – perhaps hours a week, preparing a post, I say, bring on the money! Look into getting paid for doing what you love. As a stay at home mom, this blog has been the first thing – besides my my online store, to get my focus away from the home. So, if we can incorporate our ‘work’ and passion or love, and find an opportunity to monetize off it, I say, try it – do it! I’m still trying to get there, it’s definitely a slow process but it’s a process none the less. As they say, ‘you never know until you try.’ Is profiting off your blog something you’re doing or thought of doing – I’d like to know your thoughts on that. Thanks in advance!

My Nominees Are:

The Eclectic Contrarian

Simply Chronically Ill

God’s Whispers Of Truth

OJs Pride

Loudest Minds

Invisibly Me

Fight MS Daily

Journie 2 Woman

Wonky Brain Blog

Something To Stu Over

To my nominees, know that I enjoy your blog and that I appreciate you!

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