Actress Selma Blair And Her MS Diagnosis

If there’s one thing I enjoy doing, is watching early morning TV while sipping on coffee. The older children have gone off to school and my littlest babies are still in bed asleep. This morning was the same, only today, an interview with actress Selma Blair with host Robin Roberts resonated with me.

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In this interview actress Selma Blair shares her journey of living with MS – Multiple Scoliosis, a disease in which the immune system eats away the protective covering of the nerves. It can affect the brain, spinal cord and the optic nerves in your eyes. Aside from causing problems with vision, it affects your balance and muscle control, just to name a few. She has the most aggressive form of MS, and it has now affected her speech, as you’ll notice in her interview – spasmodic dysphonia, as well has her walking, which she now relies on a cane for assistance.

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Once again I saw yet another disease trying to strip away the life of a woman and first and foremost a mother. I can relate to her, as I myself am living with Chiari Malformation. It makes you forget all that you knew, the life you knew and emerges you in a new life that is so foreign it may as well bring you to your knees. At times not even knowing what hurts more, as it becomes nearly impossible to vocalize what is wrong and what one is psychically feeling.

In this interview actress Selma Blair mentions …

an experience while having to take her son to school about a mile away, when returning home, having to pull over mid way to take a nap. I can’t take my kids to school, physically my driving is limited, and when I do, it must be close to home. And I understand the need, that dire need to nap. It’s an overwhelming feeling, it takes over your body and mind, and you absolutely have to lie down – ASAP, and sleep.

shame, shame that comes with having chronic pain and a disease that inevitably prevents you from being the mother you desire to be. And all you can do is what you can, to the best of your ability.

telling her son. She mentions that it wasn’t at all difficult sharing her diagnosis with her son. And I agree! Telling the children is so important. In my case, we’ve been open with the children, from why mommy needs quiet, why mommy needs to sleep, to why mommy needs to visit the doctor and why mommy needs to do an MRI. It is paramount to keep the children in the loop!

‘what gets you through those difficult days?’ … she gets in bed and doesn’t move. You just can’t do it all and it’s fine to feel crappy. Her son gets it and she has learned not to feel guilty. This is such an important message. A message to all those parents, that feel the need to play a role they can no longer play, the one where they can do it all, without the need of a break. When you’ve been diagnosed with something like MS or Chiari Malformation, you will have those days where you can’t move, where you get stopped in your tracks and can no longer move. Don’t do more than what your body can handle, put the guilt aside and live your truth. As she said, ‘it’s fine to feel crappy.’

If you haven’t seen the interview, I encourage you to do so, spreading awareness is essential as it motivates others to come out of the shadows and not feel ashamed or alone. When you voice your experience, you not only give a face to the illness, but you help others that are going through the same.

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Chiari Sister, I See You

Chiari Sister, I See You

As a stay at home mom, I frequently think about other moms that are in my position. It’s no secret that the stay at home parent doesn’t get enough credit. The day to day seems lost in translation to many, except the one living it. And often we need the reassurance, because as mothers – humans, we want to be seen and loved.

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Whether you have Chiari Malformation + Syringomyelia or any other illness that physically impairs you from feeling your best, know that you are doing your very best. I often compare myself to the wrong people, to those that don’t have physical pain and not needing to be medicated for pain relief.

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As for the stay at home parent living with chronic pain though, the day to day is different and is a tiny bit more challenging. And for me, the physical pain can cause me to have self-doubt, so today, to my chronic pain brothers and sisters, I want you to know, I hear you and see you.

I want to reassure you that you are enough.

Just in case you haven’t heard it today, you did good!

You did more cleaning than your body could handle. It’s OK, not to do more, your body will thank you later.

Yes, it’s OK, the rest can wait.

You folded the laundry that had been sitting in the basket for over a week – no judgment, you did it!

You cooked a meal with love, and that’s all your family could ask for.

You’re pushing through the pain with every step you take – you’re a warrior!

Don’t be hard on yourself, you’re 1 in 1,000 uniquely designed people and not everyone will understand – and that’s OK!

Push through, shower; push through, brush your hair; push through, push through, push through.

Take a break, a much needed break.

Know that your illness doesn’t define you – you are beautiful, believe it.

You are so loved, and you are just as beautiful on the inside as you are on the outside.

You are not alone.

Chiari sister – I see you.

A-

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The Liebster Award – 4

Thank you to my fellow blogger The Eclectic Contrarian. If you haven’t read his incredible poems or been to his blog for some lifting and motivational writing – pay him a visit! Thank you again for your support, I’m humbled.

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Here’s How It Works:

• Create a new blog post on your blog thanking the person that nominated you, link to their blog and put in a graphic of the award.

• Answer the questions that were provided, and then share some facts about yourself.

• Create a new set of your own questions for others to answer.

• Nominate 5-11 others and share your blog post with them so they can accept their awards

I’ve Been Asked The Following:

-Whats a topic you love and don’t love to write about?

Always appreciate humor. And honesty. Or should I say honesty in form of humor.

I began this blog with Chiari Malformation + Syringomyelia in mind, however, I have my days when I just can’t get myself to speak on the subject. It just seems to drag me down at times, realty sometimes can get the best of me and I choose to not think on the matter.

-Who and what influences you to write?

Life itself, the brutal truths, the humor in life, my kids and what’s been on my mind at that particular time.

-What emotion gets your creative gears rolling?

Whichever emotion I am feeling at that moment is the best in getting me to write. Whether I’m feeling a bit low, happy or excited.

-Do you write from who you are? Or, who you wish you to be?

I like to go with who I am. I may not be everyone’s cup of ‘tea’ but being myself, authenticity is what will be the greatest in the long run. Those whom choose to stay, will and those who don’t, won’t. And that’s OK.

-Are you a city, country, foreign or even fantasy/sci-fi type of person?

Let’s go with foreign. I’m a little complex, but authentic.

Interesting Things About Me:

I’m a whopping 5′ feet tall!

I’m a righty and have two of my little girls that are lefty.

One of my favorite actresses is Julia Roberts and comedians Robin Williams†

I dislike talking on the phone – and texting

I will hold you to your word, which can be both a blessing and a curse.

I like to be punctual / on time to places. I believe firmly in respecting peoples time.

I think communication is key in any relationship, friendship or otherwise.

My family absolutely loves all things Disney World, including Walt Disney himself, his story, life, how it all began, etc.

Am very much looking forward to the movie ‘Toy Story 4’ being released later this year

As a stay at home mom, I like to work in an organized and clean house, otherwise it’s a no-go!

If I can learn how to do it, and do it myself, I will, for instance, painting walls, dying my own hair at home – been doing it for years, and just recently, cutting my boys hair at home because at $20 x3 boys = doing it myself! No offense to the professionals  🙂

I Nominate:

Simply Chronically Ill

Daily Grind Of A Stay At Home Mom

Bereaved Single Dad

Stubaby777

Gods Whispers Of Truth

My Questions To You Are:

• Do you feel your blog represents who you truly are?

• When in a rut, what motivates you to continue to write?

• Is there a topic that is off limits in your writing / blog?

• Was there any one person that motivated you in starting your blog?

Thank you to my nominees, I appreciate your time, so please take your time in responding.

Ana

Versatile Blogger Award

I’ve been nominated for this award by the ever so strong and wonderful James over at My Place 3187. This is my first ‘Versatile Blogger Award’ and am beyond excited, so thank you again James for thinking of me.

Versatile Blogger Award

Rules:

  1. Thank the blogger who Nominated you for this Award.
  2. Include a link to their blog.
  3. Select 15 Bloggers that you’ve recently discovered or follow regularly.
  4. Nominate these 15 Bloggers for the Versatile Blogger Award.
  5. Let each of your Nominees know that you have Nominated them on one of their blog posts.
  6. Finally, tell the blogger who nominated you 7 things about yourself.

Seven Things About Myself:

  1. This is a BIG one – ready?! My name is Ana not Chiari
  2. I don’t like chocolate – but do enjoy other desserts and treats
  3. I have six little’s – no twins, you read right, six (Enlgish), seis (Spanish), sei (Italian)
  4. I’m fluent in English and Español 
  5. I know my numbers in Italiano – only, I tried
  6. I was diagnosed in 2013 with Chiari Malformation + Syringomyelia a congenital condition and brain disorder, I’ve had brain surgery for Chiari Malformation (decompression craniectomy) and in 2017 spinal canal surgery for Syringomyelia (laminectomy) – was placed a syrinx-shunt
  7. I have a YouTube Channel – simple and easy nail polish tutorials

Bonus: I enjoy all types of music – including country … my current replay / favorite Bebe Rexha feat. Florida Georgia Line ‘Meant To Be’ – so good!

My Nominees Are:

Bereaved Single Dad

All The Shoes I Wear

Cole Camp Fire Blog

Jason Frels

The Eclectic Contrarian

Something To Stu Over

Everyday Magic With Jubilee

Maggie Tiggles

Fight MS Daily

WCR 281

Simply Chronically Ill

Miraculous Smile

My Namaste 365 Online

A sweet thank you to all my nominees, I always enjoy your posts and look forward to reading ‘seven things’ about you all!

A-

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Reblog Wednesday: My story — God’s Whispers of Truth

In my short blogging journey I can say, that I’ve come across some great people here on WordPress – phenomenal! These individuals are going through their own struggles yet still find a way to find strength and continue to find the light through the chaos that life can sometimes be. This is where today’s share comes in, I want you to meet Vivian, a fellow blogger, a sweet mama of four, wife and warrior fighting TBI – traumatic brain injury. I share her story in hopes that it allows you to know that what you’re going through today, you will get through because of Him.

Cast all your anxiety on him because he cares for you. 1 Peter 5:7

When I was diagnosed with Chiari , I can’t tell you I didn’t feel alone, I can’t tell you I didn’t feel scared and I can’t tell you I felt hopeless. But with time, things became clear and I became aware that through my diagnosis God has been helping me, helping me with patience and helping me accept myself, as I am – illness and all. He’s ahead of it all, ahead of any diagnosis and ahead of the plans He has for me.

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Welcome, my name is Vivian and I’m a TBI warrior, homeschooling mom of four and wife to a great and hard-working man. As a Christian walking through the valley of brain injury and recovery, I can not stress enough how much the power of God’s strength has held me up and given me courage and […]

via My story — God’s Whispers of Truth

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Do you love pastel colors, take a look at my latest YouTube video for more of this nail tutorial.

Reblog Wednesday: Badass — Real Life of an MSW

There have been so many moments in my life where there has been self doubt. The moments where I think of doing something and I hold myself back. Because as the saying goes, ‘I am my own worst critic.’

The negative thoughts often are too hard to avoid and the positives are often hard to believe.

If I’ve ever thought of starting to live, to breathe, to be free in my own skin, I think that time is now. The time to take the leap, the jump, that jump that’s going to take me to where I want to be, that time is now. I was reading a story on a Texan woman police officer, she was and still holds the record for being the oldest woman to ever been sworn in the academy in her city, at the age of 54. Her story was both astonishing as it was inspiring.

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In the few months that I’ve been blogging many have touched my heart, inspired me and motivated me, as living with Chiari + Syringomyelia can really take a toll to ones spirit. But as I battle my days with chronic pain, this post by Real Life Of An MSW was a great reminder of the abilities that lies within a woman. It reads, ‘a badass woman starts her projects …. doesn’t wait for an invitation.’ This here reminded me of how regardless of my physical pain, everyday I still need to continue to push through – keep pushing. Since I began my journey here – I’ve surprised myself more than anyone, I’ve open an online shop and just very recently Simple Nail Designs – my YouTube channel.

What the mind can overcome when the will to thrive rises.

It’s also a reminder that a woman is far greater than anything, far greater than she can even imagine, she’s strong, she’s powerful, she’s determined, because she’s simply, ‘a badass.’

Happy Wednesday.

A-

A Badass woman doesn’t wait for people to ask her to do something or notice how great she is, she says. She starts her projects, take up space, or raise her hand because she doesn’t have to wait for an invitation. -Jennifer Baumgardener Positively Purging-I welcome your feedbacks in the comments and your likes […]

via Badass — Real Life of an MSW

Blogger Recognition Award 2018

I received this incredible recognition by James, he’s over at Myplace3187. I’m a relatively new blogger and James is one of the first bloggers that I began to follow, since then he’s been an amazing support for my page, as he has for me. Thank you James for it all and for this ‘Blogger Recognition Award.’

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The Rules:

  1. Thank the Blogger who nominated you and provide a link to their blog.
  2. Write a post to show your Award.
  3. Give a brief story of how your blog started.
  4. Give two pieces of advice to New Bloggers
  5. Select 15 or more bloggers for this award.
  6. Let each Nominee know you’ve Nominated them and leave a link to your post.

How I Started Blogging ….

There are a few reasons behind having started this blog, however the main one was bringing awareness to my illness – Chiari 1 Malformation + Syringomyelia. It’s a congenital condition in which the brain tissue extends into the spinal canal. There are 1 in 1,000 people living with this rare condition. The great news – since I started this blog, I’ve connected with so many wonderful fellow ‘Chiarians.’ Although it isn’t a walk in the park, to feel their strength and support is what I’ve been wanting – to connect with those that are walking in my shoes. They are the reasons for this blog.

I’m also often called mom by six tiny humans and wife by a Marine veteran. So, here you will find a glimpse of my life, all that’s in between and my life with chronic pain.

Two Pieces of Advice For New Bloggers ….

  1. Definitely try not look at your stats – says the one that just looked at her stats! I know it’s hard, I know it’s there, I know numbers ‘don’t lie’ however those numbers will break you on a bad day. Keep focused, have patience and the rest will follow.
  2. Have a good thing ‘going’?! Don’t be afraid to monetize from your blog. Yes, I love to blog, I enjoy writing and if you have been a follower of mine, you’ve noticed that I have three days out of the week where I will absolutely try my best to blog because it helps me keep myself on track. My life is a bit busy so I appreciate a good schedule. However, with that said, blogging is a lot of work, hours, at times researching and overall time consuming! Shocker, I know! So, if you love what you’re doing, you’re spending countless – perhaps hours a week, preparing a post, I say, bring on the money! Look into getting paid for doing what you love. As a stay at home mom, this blog has been the first thing – besides my my online store, to get my focus away from the home. So, if we can incorporate our ‘work’ and passion or love, and find an opportunity to monetize off it, I say, try it – do it! I’m still trying to get there, it’s definitely a slow process but it’s a process none the less. As they say, ‘you never know until you try.’ Is profiting off your blog something you’re doing or thought of doing – I’d like to know your thoughts on that. Thanks in advance!

My Nominees Are:

The Eclectic Contrarian

Simply Chronically Ill

God’s Whispers Of Truth

OJs Pride

Loudest Minds

Invisibly Me

Fight MS Daily

Journie 2 Woman

Wonky Brain Blog

Something To Stu Over

To my nominees, know that I enjoy your blog and that I appreciate you!

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