Actress Selma Blair And Her MS Diagnosis

If there’s one thing I enjoy doing, is watching early morning TV while sipping on coffee. The older children have gone off to school and my littlest babies are still in bed asleep. This morning was the same, only today, an interview with actress Selma Blair with host Robin Roberts resonated with me.

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In this interview actress Selma Blair shares her journey of living with MS – Multiple Scoliosis, a disease in which the immune system eats away the protective covering of the nerves. It can affect the brain, spinal cord and the optic nerves in your eyes. Aside from causing problems with vision, it affects your balance and muscle control, just to name a few. She has the most aggressive form of MS, and it has now affected her speech, as you’ll notice in her interview – spasmodic dysphonia, as well has her walking, which she now relies on a cane for assistance.

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Once again I saw yet another disease trying to strip away the life of a woman and first and foremost a mother. I can relate to her, as I myself am living with Chiari Malformation. It makes you forget all that you knew, the life you knew and emerges you in a new life that is so foreign it may as well bring you to your knees. At times not even knowing what hurts more, as it becomes nearly impossible to vocalize what is wrong and what one is psychically feeling.

In this interview actress Selma Blair mentions …

an experience while having to take her son to school about a mile away, when returning home, having to pull over mid way to take a nap. I can’t take my kids to school, physically my driving is limited, and when I do, it must be close to home. And I understand the need, that dire need to nap. It’s an overwhelming feeling, it takes over your body and mind, and you absolutely have to lie down – ASAP, and sleep.

shame, shame that comes with having chronic pain and a disease that inevitably prevents you from being the mother you desire to be. And all you can do is what you can, to the best of your ability.

telling her son. She mentions that it wasn’t at all difficult sharing her diagnosis with her son. And I agree! Telling the children is so important. In my case, we’ve been open with the children, from why mommy needs quiet, why mommy needs to sleep, to why mommy needs to visit the doctor and why mommy needs to do an MRI. It is paramount to keep the children in the loop!

‘what gets you through those difficult days?’ … she gets in bed and doesn’t move. You just can’t do it all and it’s fine to feel crappy. Her son gets it and she has learned not to feel guilty. This is such an important message. A message to all those parents, that feel the need to play a role they can no longer play, the one where they can do it all, without the need of a break. When you’ve been diagnosed with something like MS or Chiari Malformation, you will have those days where you can’t move, where you get stopped in your tracks and can no longer move. Don’t do more than what your body can handle, put the guilt aside and live your truth. As she said, ‘it’s fine to feel crappy.’

If you haven’t seen the interview, I encourage you to do so, spreading awareness is essential as it motivates others to come out of the shadows and not feel ashamed or alone. When you voice your experience, you not only give a face to the illness, but you help others that are going through the same.

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Reblog Wednesday: I Asked God: A Facebook Post From A Friend — Something to Stu Over

This post for ‘Reblog Wednesday’ couldn’t have come at a better time. The thoughts of wanting to feel better physically are reoccurring thoughts, coming in too often throughout my day. And the fact that I can’t change my circumstance or diagnosis is evident in this post and is the perfect reminder of things I conveniently choose to forget. This ‘Reblog Wednesday’ is from a blogger I hold dear and near to my heart, Stuarthis honesty, love for Christ and life, is what I appreciate from reading his work. I couldn’t appreciate him more than I already do.

This post unraveled the truths of my reality. I can either learn to accept my reality or continue to live in the falsehood of reminiscing of what my life once was – life without the prescription medication and physical pain. It’s up to me. If I can only touch ground, ‘come back to Earth,’ as they say, and stop living in the clouds, I’d be able to open my eyes to see my life as it is. And perhaps only then will my sense of purpose fuel my desire to live a more happy and fulfilled life.

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The conversation with God in the post reminded me of my own conversations with God.

I  want to tell God what to fix in my life …

my diagnosis – fix it, reverse it,

my physical pain – take it away,

my old, ‘normal self’ – bring her back,

my finances – increase it,

my brain / head – make it stop spinning,

my son’s autism diagnosis – make it better,

my happiness – give me more of it.

And all the while, I’ve been praying for what I cannot change. He’s saying surrender, trust me, leave it to me as I do all things for a reason – beyond your humble comprehension. The reasons for it, all will be revealed in due time – patience. And love, love is what I need, it’s what I should be praying more for, so that I may accept my diagnosis with love, accept things that I will not be able to change.

The trials and tribulations are only there to get me away from worldly things and closer to Him.

Have a blessed day.

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I asked God to take away my habit. God said, No. It is not for me to take away, but for you to give it up. I asked God to make my handicapped child whole. God said, No.. His spirit is whole, his body is only temporary. I asked God to grant me patience. God […]

via I Asked God: A Facebook Post From A Friend — Something to Stu Over

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Reblog Wednesday: My story — God’s Whispers of Truth

In my short blogging journey I can say, that I’ve come across some great people here on WordPress – phenomenal! These individuals are going through their own struggles yet still find a way to find strength and continue to find the light through the chaos that life can sometimes be. This is where today’s share comes in, I want you to meet Vivian, a fellow blogger, a sweet mama of four, wife and warrior fighting TBI – traumatic brain injury. I share her story in hopes that it allows you to know that what you’re going through today, you will get through because of Him.

Cast all your anxiety on him because he cares for you. 1 Peter 5:7

When I was diagnosed with Chiari , I can’t tell you I didn’t feel alone, I can’t tell you I didn’t feel scared and I can’t tell you I felt hopeless. But with time, things became clear and I became aware that through my diagnosis God has been helping me, helping me with patience and helping me accept myself, as I am – illness and all. He’s ahead of it all, ahead of any diagnosis and ahead of the plans He has for me.

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Welcome, my name is Vivian and I’m a TBI warrior, homeschooling mom of four and wife to a great and hard-working man. As a Christian walking through the valley of brain injury and recovery, I can not stress enough how much the power of God’s strength has held me up and given me courage and […]

via My story — God’s Whispers of Truth

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