Happy Meme Monday: Black Friday in America

Have you heard of ‘Black Friday‘? This is a day when stores all across America offer ridiculously low prices on items, such as toys and electronics. This happens in November, the day after Thanksgiving. While some are willing – and others not, to spend time with their families on Thanksgiving and then go straight to their favorite store – yes, at night! And yes, they’re camping out in front of a store. They will wait – some all night, until that store opens the next day, to ensure they are first in line and get the item they want at the low price being offered. I know, you’re confused, so am I. I’ve never understood this.

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Have you been to a store on ‘Black Friday’ and snagged a great deal?! Was your experience a pleasant one?! Do share.

Happy Meme Monday.

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My YouTube Channel Is Born

My YouTube Channel Is Born

Have you ever felt so bad, in so much pain, feeling like you have enough on your plate, but can’t stop pushing forward?! That’s me at this moment in my life. I’ve decided¬†Chiari + Syringomyelia¬†will have a place in my life, but not have my entire life. As positive as that may sound, it is extremely difficult, as I don’t only deal with the mental challenges of having a non-curable illness but also the physical aspect of it all.

I mentioned to my daughter earlier this week about perhaps starting a nail tutorial YouTube channel – for beginners, as I’m one myself. And before I could finish talking she said, ‘do it!’ Oh, to have the heart of a kid again, no fears, no doubts, just pure determination. That was the push I needed and before I had the time to second guess myself, I ordered a simple¬†iPhone tripod¬†from Amazon Prime, thought of a name for the channel, spent 1,000 hours¬†– or what felt like, watching YouTube videos on how to make YouTube videos – did you get all that, and my channel¬†Simple Nail Designs¬†was born!

With a new tripod in hand and my iPhone, because right now any fancy equipment will have to wait. And this video here is the result of a small idea made reality.

 

Make things happen today.

It doesn’t take too much money to start an idea, try to work with what you already have. Don’t think of making any large investments right away. If you’ve been contemplating on something, big or small, all it takes to make it happen is passion and motivation.

How serious are you about achieving those dreams and how hard are you willing to work for them. I have absolutely no knowledge on recording a video and editing –¬†none.¬†I did¬†however, know that the idea could turn into something. Maybe it won’t grow right away, but with patience, it will grow.

I share the news so you can follow along this new journey of mine. Please take a look at the video – my very first, AND please subscribe! Don’t be a ghost follower, they’re frowned upon!

I’m self-taught right now, so if you have any ideas on how to make videos that much better, please share!

Have a wonderful day.

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Photo: Carl Heyerdahl

Disclosure: Mom Life With Chiari is a participant in the Amazon Services LLC Associates Program, an affiliate advertising program. As an Amazon Associate I earn from qualifying purchases by linking to Amazon.com and affiliated sites. I will not recommend or buy anything that I do not already own and love or would not use for myself and my family. I make a small commission when you click and make a purchase on any link my website provides at NO additional cost to you. Thank you in advance for supporting companies that support me!

Happy Meme Monday: Parenting + The Hunger Games

If there’s one thing I’ve learned about parenting is not to judge someone else’s parenting –¬† speaking about toddlers especially. Have you heard the saying, ‘terrible twos’?! Yes, they were wrong, there’s the terrible twos, threes and fours. Maybe even beyond, but who am I to judge?!

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Have you been present when a mom – or dad, is clearly struggling with their child, you know, and then you see the parent trying to kneel down to the child’s level, whispering in the child’s ear, all in hopes the child listens, only to land on deaf ears?! I know the feeling. I’ve seen that, I’ve experienced that, and it all can be a bit brutal!

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Here’s to supporting one another in parenthood in this task of raising our children and surviving the process.

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National Chiari Awareness Month – 2018

National Chiari Awareness Month – 2018

The month of September is Chiari Awareness Month. In May of 2013 I was diagnosed with¬†Chiari 1 Malformation and Syringomyelia¬†and my life since then has changed – tremendously. I remember going recently to a store, because it’s a place I visit regularly – they’re a sweet Vietnamese family, I’ve got the chance to get to know them. We were discussing Chiari the last time I went there, one of the daughters said, ‘besides going to the hospital when I was born, I’ve never been there.’ I was speechless, I know my way around – just about, every hospital in my area, I even know what hospital not to go to because they lack ‘my’ department – neurology. The difference between someone with Chiari Malformation, Syringomyelia, among many other different illnesses, is that we know too well what is like to be at a hospital – while others don’t. It’s an unfortunate truth.

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There are currently four types of Chiari Malformation and each are classified by the severity of the disorder and the parts of the brain that descend into the spinal canal. As you can see, I have type 1, this is when the lower part of the cerebellum called the cerebellar tonsils extends into the foramen magnum. This is where only the spinal cord would otherwise pass through. Chiari unfortunately goes un-diagnosed, and is first noticed during adolescence or adulthood, usually by accident during an examination of another condition. As it happened to me, I went into the ER in May of 2013 for what was suppose to be a quick ‘trip to the ER,’ but turned out to be far more serious than your typical ‘headache.’

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What surgeries have I had for Chiari 1 Malformation and Syringomyelia? As for the Chiari, in May of 2013 I had emergency posterior fossa decompression, here the surgeon created more space for the cerebellum as this relieves pressure on the spinal cord. At this time the surgeon also made an incision on the back of the head and down the neck area, and removed a small portion of the bone at the bottom of the skull, this is called, craniotomy.

In November 2017, for the Syringomyelia, I had¬†spinal laminectomy¬†in which they placed a syrinx shunt – this shunt (a flexible, tube like device, according to my surgeon it’s also less than the size of a hair strand in diameter) will remain in my body forever.¬†The syrinx shunt diverts the fluid from the syrinx into another space in the body where it can be absorbed. There are a few locations where the fluid can be absorbed and this is what differentiates one shunt from another. The shunt I have is absorbed in the peritoneal space, also known as the abdomen. The space location is determined on the patients case and the surgeons personal preference.

Why spread awareness for Chiari Malformation?¬†Without awareness there is no funding, without funding, there is no research, without research, there is no cure, without a cure, there is no hope. However, if not in my lifetime, maybe another’s, but I pray that there will be a cure for Chiari – someday.

Today, I’m still living with a number of ongoing symptoms such as difficulty swallowing, headaches, vertigo, imbalance, difficulty concentrating, etc. which also includes chronic pain. I need to be monitored for changes that can occur in the CSF flow or cerebrospinal fluid. I’m currently experiencing severe numbness on my left side, especially in my face and tongue – you’d never know it if you’d see me. However, I finally have a great neurological team that is helping by monitoring me, via MRI’s and managing my pain levels, via medication, as best as they can. It’ll always be a process, but it’s a process that with patience, it’s as tolerable as it can be.

The perfect cure for worry, is to trust in God. 

And in light of my series ‘Happy Meme Monday’ I’ve decided to include some Chiari Malformation memes. Enjoy.

These memes – sum it all up. Have a blessed Labor Day.

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Happy Meme Monday: Let’s Compare Headaches

If you or someone you know has¬†Chiari Malformation¬†or any other illness that is followed by chronic pain, you know the hard task of having to explain the illness to people. That dreaded moment of having to explain how you feel, how it affects your life,¬† sometimes even after you’ve told these same people that your illness has no cure – multiple times! Not to mention trying really hard to tell them about your pain levels, headaches and what you have to live with, in such a way that won’t scare the Jesus out of them!

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It doesn’t stop there, because even after you’ve explained the type of pounding headaches you have, they then proceed to tell you about their headaches. Because they think it compares to yours and how sharing that with you somehow will comfort you – yes, this meme is for you!

Happy Monday.

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Searching For A Sign

I often get so many thoughts running through my mind and maybe you can relate.¬†These thoughts of wanting to do something else, something more, maybe learn a new language or perhaps learn a new recipe. As for me I think with the blog and the online¬†store¬†I have, is enough considering there are still little ones to look after. But really, there’s always that one thing, that thing that we think we should be doing, should have done or goal yet to be reached. And all you’ve been doing is waiting, waiting for something, perhaps God to come and give you a sign. Perhaps because you’re not sure, you have self doubt, you’re afraid, afraid of failure or afraid of success, but you’re afraid. So, let’s say, you do it, whatever you’ve been thinking of doing, a job change, going back to school, yes, lets just say you do it. Wouldn’t it be wonderful to finally do what you’ve been thinking about doing for so long?!

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This often reminds me of those who have been stuck in a rut for so long. We become content with what we have because it’s become our safe place and it’s what we’ve known for so long. In my opinion, the number one culprit in relationships, is the argument of never having enough money, you complain there isn’t enough, but I often question, what are we doing to change that, what are we doing to get to the finances that we need to finally ‘make ends meet.’ In all honesty, probably nothing. So, if you’re a mother, a father or simply someone that’s looking to take that leap – take it! It’ll take you farther than you know.

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The First Day Of School – Poem From A Teacher To A Parent

Have your little ones – or not so little ones, begun school? My little ones went back to school this week and it’s been quite the ride for my four year old. The first day, she was ecstatic, there were no words to express her excitement to finally be able to attend school with her older siblings. However, she arrived home not understanding why there were children crying in her classroom. As much as we’ve tried to calm her heart, she isn’t liking what she’s seeing. It can truly be an adjustment for some children, especially for first time students – like my daughter. As teachers have in the past told me, preschoolers will often take about a week to adjust, that’s what I’m hoping for her.

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I can understand why people would assume that since there is a tiny tribe behind me, that I am somewhat numb to many ‘firsts’ my little ones experience. But that is far from the truth. I’m experiencing firsts with each and every one of them. As much as they are siblings, as much as they may have the same features, maybe even mannerisms, they are so different. They are individuals, they even cry different – as only their own parent would know, they talk different, they even handle situations differently, some are shy and some even far more sensitive than the other. My oldest although entering the sixth grade – the dreaded middle school, she is also experiencing many ‘firsts’ and as a parent, I am experiencing it all with her.

I wanted to share with you today a poem given to me by my four year old’s preschool teacher. It served as a reminder that teachers understand the adjustment isn’t only experienced by the child, but also the parent. So, whether you have one, two or a tiny tribe like mine, every experience with our children is our first. And I have a feeling, that will never change.

‘The First Day Of School’ – From A Teacher To A Parent

I gave you a little wink and smiled

As you entered my room today

For I know how hard it is to leave

And know your child must stay. 

You’ve been with her for four years now

And have been a loving guide,

But now, alas, the time has come

To leave her at my side.

Just know that as you drive away

And tears down your cheeks may flow

I’ll love her as I would my own

And help her learn and grow.

From as a parent, I too know

How quickly the years do pass

And that own say soon it will be my turn

To take my child to class.

So please put your mind at ease

And cry those tears no more

For I will love her and take her in 

When you leave her at my door.

Love,

From A Teacher To A Parent

Have a wonderful day. I pray that your children have a phenomenal school year.

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