Actress Selma Blair And Her MS Diagnosis

If there’s one thing I enjoy doing, is watching early morning TV while sipping on coffee. The older children have gone off to school and my littlest babies are still in bed asleep. This morning was the same, only today, an interview with actress Selma Blair with host Robin Roberts resonated with me.

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In this interview actress Selma Blair shares her journey of living with MS – Multiple Scoliosis, a disease in which the immune system eats away the protective covering of the nerves. It can affect the brain, spinal cord and the optic nerves in your eyes. Aside from causing problems with vision, it affects your balance and muscle control, just to name a few. She has the most aggressive form of MS, and it has now affected her speech, as you’ll notice in her interview – spasmodic dysphonia, as well has her walking, which she now relies on a cane for assistance.

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Once again I saw yet another disease trying to strip away the life of a woman and first and foremost a mother. I can relate to her, as I myself am living with Chiari Malformation. It makes you forget all that you knew, the life you knew and emerges you in a new life that is so foreign it may as well bring you to your knees. At times not even knowing what hurts more, as it becomes nearly impossible to vocalize what is wrong and what one is psychically feeling.

In this interview actress Selma Blair mentions …

an experience while having to take her son to school about a mile away, when returning home, having to pull over mid way to take a nap. I can’t take my kids to school, physically my driving is limited, and when I do, it must be close to home. And I understand the need, that dire need to nap. It’s an overwhelming feeling, it takes over your body and mind, and you absolutely have to lie down – ASAP, and sleep.

shame, shame that comes with having chronic pain and a disease that inevitably prevents you from being the mother you desire to be. And all you can do is what you can, to the best of your ability.

telling her son. She mentions that it wasn’t at all difficult sharing her diagnosis with her son. And I agree! Telling the children is so important. In my case, we’ve been open with the children, from why mommy needs quiet, why mommy needs to sleep, to why mommy needs to visit the doctor and why mommy needs to do an MRI. It is paramount to keep the children in the loop!

‘what gets you through those difficult days?’ … she gets in bed and doesn’t move. You just can’t do it all and it’s fine to feel crappy. Her son gets it and she has learned not to feel guilty. This is such an important message. A message to all those parents, that feel the need to play a role they can no longer play, the one where they can do it all, without the need of a break. When you’ve been diagnosed with something like MS or Chiari Malformation, you will have those days where you can’t move, where you get stopped in your tracks and can no longer move. Don’t do more than what your body can handle, put the guilt aside and live your truth. As she said, ‘it’s fine to feel crappy.’

If you haven’t seen the interview, I encourage you to do so, spreading awareness is essential as it motivates others to come out of the shadows and not feel ashamed or alone. When you voice your experience, you not only give a face to the illness, but you help others that are going through the same.

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19 thoughts on “Actress Selma Blair And Her MS Diagnosis

  1. My goodness Ana, this was an incredible post with so much emotion. You really wrote a fantastic post not only about Selma, but MS as well. You are a pretty great woman! Selma’s interview was amazing and powerful, I could relate all too much. I think she will be a great advocate for all of us living with this illness and her courage will be inspirational. Lots of love to you sweetie ♡♡

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    1. Oh I’m so glad you like it Alyssa. Yes, she’s doing great things.
      I live with Chiari but I only can imagine what it’s like for you and people like Selma – even the naps, the need to lay down. Oh gosh! I can relate, come 1pm my body begins to shut down and there isn’t enough coffee in the world that can help. This is a daily battle – daily.
      God bless her for being able and accepting to doing an interview. I hope this can continue to open the doors to raising awareness on MS. We need people like her, in her position to speak up, as often times people with rare illnesses are overlooked.
      Many, many hugs. And may you find comfort in knowing that you are not alone. Likewise 💕

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      1. Yes, no worries, not many do – not even doctors.
        I want to say I’m handling things well, until things go south. And I want to think I’m strong, until I’m not and I have to cry it out. It’s tough because no one knows the behind the scenes. At times I’m typing with my head pounding in pain and my vertigo not allowing me to see straight. It can all be a bit frustrating but we have to keep going, keep moving. 😊🙏🏽

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      2. Awe so sweet. Isn’t amazing how these illnesses can connect us to some strong individuals? Like ourselves. I feel like I have bad days and worse days, no in between. And today my pain level is one of the worst.
        But I’m reminded that I’m not alone and that there’s others.

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      3. Thank you sweetie! I am so sorry your pain was so awful and do hope you feel much better soon. Is it raining where you live? I am asking because it has been raining where I am, which causes my pain to be much worse. Yesterday my pain on the scale of 1-10 was a 12!
        None of us are ever alone because the support team we share is amazing!

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  2. Oh Ana, I’m in tears now……her courage and postive attitude in spite of her illness is inspiring! What a courageous thing to interview with Robin Roberts during a flair up, amazing!! I can relate to how our illness effects mothering and the guilt/shame that we can feel….it’s almost like a robbing but I know God is using my brokenness to create more compassion towards others from me and also my kids, whereas we wouldn’t ever had been for staying perfectly healthy. Thank you dear friend for sharing this beautiful woman’s story and for what you wrote. Truly, these tears are mixed, happy and sad because I feel supported by community and grieved for all who fight daily. Many prayers being said for you!!🙏🙏🤗

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    1. I share your same thoughts. She is truly inspiring to be doing an interview.
      I think even though we all have a different diagnosis, we are all mothers with a diagnosis and that allows us to really feel for one another. We’re all trying our very best in spite of what we are physically going through.
      I agree. I don’t know what my life would have been without my diagnosis. Instead I try to remain in the moment, and grateful, as I don’t know what tomorrow will physically bring me.
      I’ve cried those tears too many times, often in the bathroom since I know there’s tissue at an arms reach. 😏 Even though there are few of us fighting this fight, together and supported, we are stronger.
      Continue to fight – daily.
      Thank you, likewise and may God continue to guide us through this journey of our lives. ☺️🙏🏽💕

      Liked by 1 person

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